On July 22, 2017 Maithili’s story appeared in a Belgian newspaper: http://www.hln.be/hln/nl/957/Binnenland/article/detail/3214586/2017/07/22/Belgische-artsen-gaven-Maithili-12-op-maar-revolutionaire-kankertherapie-in-Mexico-blijkt-nu-toch-aan-te-slaan.dhtml
On August 26, 2017 appeared the following story:
Hi. We’re Stefanie Rotsaert and Samuël Vanhille from Assebroek, near Bruges, Belgium.
We have a 12-year-old daughter, Maithili. Our world collapsed on August 11, 2016, when doctors discovered a brain stem tumor. We are talking about a Diffuse Intensive Pontine Glioma, DIPG. This is a very rare tumor that affects 2 to 3 Belgian children each year. The tumor is inoperable because it’s intertwined with all the nerves governing the body’s vital functions. The prognosis the doctors gave us was bad: 3 to 9 months, max, the last phase of which would be constant deterioration …
Maithili went through radiotherapy and immunotherapy in Cologne and CED in London. This kept the tumor quiet for a while. In May this year, however, we discovered that the tumor had become resistant and was starting to grow slightly. Because of this growth, the tumor will start putting pressure on nerves that are vital, causing paralysis, difficulty swallowing and breathing, and eventually death.
Her condition is stable now, but here in Belgium doctors are no longer able to give us help or hope. Worldwide, there are a few places that conduct research into DIPG, and scientists are getting closer to finding a solution. That’s how we ended up in Monterrey, Mexico, where researchers have been studying this type of tumor in children for over 24 years. Here they combine immunotherapy with an intra–arterial chemotherapy. The results give us hope! Below you can find an article about a girl from England who is receiving the same treatment: http://www.dailymail.co.uk/femail/article-4570944/Terminally-ill-British-miracle-recovery.html
After consulting our health insurance, we were told that the moment we go abroad for treatment – the only one that gives our daughter a chance of survival – we’re on our own. We will have to pay all medical costs ourselves. We’re talking about 25,000 euros for each treatment, and Maithili needs this treatment every 3 weeks … How many treatments she will need depends on how the tumor reacts. Financially, this is too much for us, even though we both have steady jobs. So we started fundraising.
It’s our only chance to save our 12-year-old daughter’s life. After the first treatment on July 4, 2017, Maithili told us she can feel the strength returning to her right hand and leg, and we noticed that she can speak more fluently as well.
As a parent, if you know that there’s one chance to save the person most precious to you, you have to grab that chance with both hands … We hope you feel the same and that you can help us.
We are forever grateful …
Sam en Stefanie